Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Living With Epilepsy - Adults

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

seizures at night

01/2005 | 67 Comments

I have a question to ask anyone out there. I have complex partial seizures. I do not know what happened, but this morning I woke up and my back was...
Financial issues

01/2005 | 20 Comments

Given that my epileptic condition prevents me from earning an income, I do believe that I'm not the only one facing such a difficult situation.Why not...
I've only had one big seizure, but...

12/2004 | 0 Comments

I think I've had others that I remained concious through.From reading descriptions, seems similar to 'simple partial seizures', especially the deja vu...
unverricht lundborg disease

12/2004 | 3 Comments

Can anyone suggest where I can find more information about this rare form of progressive myoclonic epilepsy?
Are They Kidding???

12/2004 | 6 Comments

I have now had two complex partial seizures and learned that I have "profound atrophy" on my left temporal and pariatal lobes. Are they kidding??? I...
Fed Up!

12/2004 | 15 Comments

I have reached the end of my rope. These seizures are wrecking my life. Doctors have no answers. I am afraid to leave my home on my own. I have been...
Resentment

12/2004 | 4 Comments

Does anyone else feel a level of resentment from family for the time, cost and energy that your epilepsy seems to take? Everyone says they understand...
JME and Arachnoid Cysts

12/2004 | 0 Comments

My husband has JME. Recently, his seizures have increased in frequency dramatically. An MRI detected an arachnoid cyst. The neurologist does not...
Sleep Deprivation Grand Mal Seizures?

12/2004 | 42 Comments

I suffered a grand mal seizure a year ago, and following all the tests over the next six months, was diagnosed not to be epileptic. The diagnosis was...
The Pretzel?

12/2004 | 0 Comments

Often at night just before I fall asleep, my left arm will will contort itself into positions for which it is not normally intended. This happens...
just diagnosed - no driving :(

12/2004 | 12 Comments

Hello, I was just diagnosed (the day before Thanksgiving) with Complex Partial Seizures at a follow-up appt after a trip to the ER last month. The doc...
I just feel broken........

12/2004 | 5 Comments

Everything feels broken my brain, and especially my spirit. I have been off work since the end of August, not by choice, but because my employer told...
living with it

12/2004 | 32 Comments

At first i thought that i was crazy, but i came to this site and i almost cried because everything is true. But is it possible to have both absence...
scared i guess

12/2004 | 1 Comments

i have recently met someone who is so lovely, but tells me he has epilepsy. He has his last seizure in December where he hit his head quite badly.I...
Like a Clock

11/2004 | 6 Comments

Ive been having my seizures for the past 3 years now. It is always the same sensation, length of time and recovery time. For the past year or so they...
Question

11/2004 | 11 Comments

My boy just phoned me and said "what to you think about when you have a seizure?", i told him i'll tell him when i see him in a few weeks. Now i have...

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.

Subscribe