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Hi, everybody. I just joined this site yesterday. I saw a forum where a few people were discussing transitioning to generic lamotrigine (just released) from Lamictol. But now I can't seem to find the forum. I'm considering the generic switch and am wondering if anyone's done it yet, gotten advice on it, etc. Please help! (Or let me know where to find yesterday's forum! It's not coming up in the search.)
Recent Comments on this Discussion
Interesting that there were so many bad reactions to generic lamictal. I've been seizure free for almost 3 months now. No side effects..nothing. I love this drug. No auras either.
I'm so glad they came out with a generic. However; they shouldn't have to do generics. Why can't we pay decent prices for the "real" thing? Stupid drug companies.
3 months ago I started taking the generic lamotrogine, till today I still get drowsy but i havent had a seizure since. I try to spread my medication throughout the day inorder to prevent the dizziness and it helps alot, You dont get drowzy at all and your seizures are under control. I really believe that everyones condition is different and the effect it will have on you will be too, so dont try to totally erase the idea of taking the generic because it might even help you as it did me, and I had grand mal seizures every week. The frustrating part is experimenting with your body, its frustrating but you have to until you find the right drug that suites your needs. I however have decided to put my trust more now into natural supplements and reflexology and believe me it helps, I just got sick of taking all this medication and feeding my body with drugs. I still am on my medication but slowly taking it out of my system.
No matter what drug you on, it will still have an affect on your system, it helps one thing but destroys another.
Well put, mistique. You do just never know. I have NEVER had a seizure while taking any seizure med. I originally started on Dilanting (10 years) and then Lamictal (6 months) and now generic lamotrigine and (again) I'm seizure free.
Cheers,
Andrew
I now have to take the generic due to Medicaid not wanting to pay for the name brand. I've always been leery about the effectiveness of generic drugs over name brand drugs. Breakthrough seizures are my primary concern. I'm close to getting my Driver's License back and having more seizures again would not be a good thing. I also take Dilantin and concerned about having to switch to generic phenytoin.
I just wanted to say that I was forced to switch to the generic brand of Lamictal because of insurance coverage. I take Lamictal for bipolar and never have had a seizure before until switching to the generic. The first day I took the generic brand I was nauseated, had stomach cramps, bad headache, light headed and was unable to concentrate. The next day I couldn't drive because I was unable to judge distance and everything was blurry and seemed to be moving very slowly. I was sluggish and couldn't walk straight. This may sound funny but it's not; I bumped into the corner of the doorway four times in one day because I couldn't judge where the opening was. I called the pharmacist and told her how I felt. She reassured me that it was not the medication doing this and told me to keep taking it but if it kept up then to bring it in and she would change it back to the brand Lamictal. On the third day, I was at dinner with my boyfriend and out of nowhere I got light headed and was really hot and started sweating really bad. I knew I was about to faint but somehow managed to get a cold rag on my neck and drink some water. On the ride home I blacked out and don't remember getting in the car, the ride home or getting out. When I got home and laid in the bed my neck started to jerk and made my head bob up and down in a fast motion. I was unable to make it stop. My body then got so heavy that I was unable to lift any part of my body, not even my arm. I thought I was going paralyzed. Then my tongue got very heavy and numb and felt like it was swelling. I couldn't talk. My boyfriend said I kept trying to say something but kept stuttering and repeating words that made no sense. I remember thinking I was dying. I had no control over my body not even my thoughts. I'm not sure what exactly happened to me that night but I'm sure I had a seizure. I called the pharmacist and she let me bring the meds back and changed the prescription back to the brand but she never reported my symptoms or asked any questions. She seemed irritated with me for complaining and having problems with it. The day after starting the brand name back I felt better, although I felt tired and a little cloudy headed still. I know for a fact it was the generic brand making me sick as a dog! I don't know about anyone else but this generic drug is bad and needs to be tested more before being distributed. Someone is going to end up getting killed or injured when taking this drug. I wrote the FDA to let them know, even though they probably don't care. The drug companies only care about the money and not the effects the drug could have on a person. So please be aware of the potential side effects and don't be afraid to speak up to your doctor AND pharmacist because they sometimes don't know the effects themselves. They listen to the drug reps description and details of the drug and take their word for it and just write the scripts.
I also was just changed to the generic Lamictal. I have been having headaches and very sick at my stomach. I don't have seizures, but I am biopolar. Lamictal seemed to work just fine. I have read different websites about the differences in these two drugs. I think the key to some of our problems could be the inactive ingredients in the generic. Just because they are inactive doesn't mean they can't make us sick. I am not sure what to do, but I am going to call my doctor this p.m. I think enough of us have had problems with this drug that the FDA should have to warn people. Will let you know what my doctor has to say.
Having problems too
When my mail-away pharmacy (associated with Anthem) switched to generic Lamictal, I began having side effects, which I never with Lamictal. About an hour after I take it, I get dizzy, nauseous and have trouble with balance. I have had a minor seizure and several "auras". My neurologist said that generics may contain less than brand names -- sometimes up to 80% less, so he increased the dose. However, he insists that the generic is not causing the dizziness, nausea, and imbalance and refused to prescribe the brand drug. I went to my PCP to see if I had some other problem; he could not identify a reason for my symptoms. I am going to the local pharmacy today to find out the cost of Lamictal. If I can afford it, I will ask my PCP to prescribe it; he did entertain the possibility that the generic is at fault.
I have been taking Lamictal for about 4 years now, its been the best drug I have ever used. Just last month out of the blue they switched me to a generic so I paid the extra premium. I have Blue Shield insurance has this happened to anyone elese
FYI: You can get coupons and cards for discounts from the manufacture, last month they sent me a card for my refills worth $50.00 per prescription off what ever you pay or your co-pay.
My neurologist told me about the generic, but he recommended that I stick with the branded Lamictal because generics are allowed by law to be as low as 80 percent the weight of the indicated dosage. That may be OK for some drugs, but for epilepsy, the drugs need to be at a relatively constant level.
He wrote me a prescription specifically for the name brand.
I switched over about 2 months ago, when it first came out. The pharmacy won't give me the name brand if they have a generic unless it is a written order by the doctor. So I figured ok, it saves me money, so why not. I called my doctor and asked her if it was ok to switch and she said there shouldn't be any problem with it but to go get blood work done after a month on it so make sure my levels are still high enough.
I haven't had any side effects or anything. The only thing I realized is that when I started it, I was very very depressed. I didn't wanna come out of my room, I was moody, I didn't go to work, didn't want to talk to anyone. It wasn't good. I just thought it was because I'm going through a tough time with my job and things like that. Just though that everything escalated and couldn't deal with it so I shut everyone out. After reading off all the side effects, I wonder if that it what happened. I'm fine now. Nothing wrong.
I have to go pick my records up at my neurologist tomorrow...she's closing her practice :( It's a shame, she is a brilliant woman. Anyways, I will ask her, if I can get in to talk to her, that is.
Jess
I am glad I stumbled upon this. I just had another tonic-clonic and my doc increased my meds. When I went to refil my script, had been a mail order so I was low anyway, I was shock that I only had to pay $10! Epilepsy meds never go generic! They stop working for everyone by the time they get that old! So anyhow, seeing as though I have Aetna POS, (an HMO pretending to be a PPO), I have to get the generic. I am a school teacher and cannot aford to pay the full price of the brand name Lamictal, plus the Topamax $25 co-pay. It is still unknown if the increased dosage will do the trick, i may have to change meds anyway. I am on 300mg twice a day. of topa and Lam.
If you have to pay for the brand name Lamictal, go to there web site and they will send you $10.00 coupons for your prescriptions. Just last month they sent me a card for 6 refills $50.00 off max per prescription.
David
I was just reading this thread and I thought my experience was important enough to register and post. I used to think generic and name brand were the same thing. My pharm. switched me to generic after over a year of problem free lamical. Bam, rashes started showing up less than a week later. (Don't worry I talked to my neurologist and the rashes aren't big enough to be dangerous) Just be careful folks. Let's just hope that now that I'm starting back on the real deal they'll go away.
My suggestion is that you talk with your neurologist about switching. I received a notice from my insurance company saying that the next time I do an at home prescription refill order, that it would be filled with generic lamotrigine. My neuro said that I should not take the generic version because the color and general make up of the pill could change my Lamictal level, resulting in a potential breakthrough seizure.
My experience with generic lamotrigine:
I don't often visit the boards here but had some recent experiences that had me checking in. Three weeks ago ( give or take a few days) I went to fill my prescriptions for 200mg and 150mg Lamictal. I have TLE with only partial simple seizures and have been on it for 3 years and have had some dosage adjustments but other than that I have done really well on it. I have never had a seizure that has resulted in me not being aware of everything going on. As far as seizures go, I really have it so much easier than so many on these boards.
My pharmacist (who is awesome) told me that the generic was now available and my insurance wasn't likely to cover the brand name anymore. I knew from experience having worked in a hospital that generic seizure medications have had some inconsistancy issues in the past and that many patients can't tolerate them. My Phamacist agreed with me especially because this was a brand new generic. He said he would call the dr to see if he could change the scripts to no subs. The dr did that and the pharmacist called the insurance co. and they said no. They would only approve the brand name if I completed a trial of the generic.
I got my new generic meds and started them on Thursday. Sunday at lunchtime I started having wicked car sickness on the way home from church. I then got so dizzy I could keep my head up straight. I couldn't open my eyes without feeling like I was going to throwup all over my car. We got home and I went up to bed as soon as we walked in the door. Less than an hour after we left church I was unable to move even 6 inches before going into a complete tailspin. I couldn't roll-over, couldn't open my eyes and fell down when my husband tried to help me to the bathroom and couldn't get back up. My husband and my father carried me down to the car and drove me to the hospital.
In the emergency room they jumped to the conclusion that I was having a stroke. Fortunately, I am compulsive about managing my own healthcare and I have a card that I carry with my allergies, medications, drs etc. and my husband carries a copy in his wallet. They called my neurologist who told them about the change in meds. My husband stayed with me for a while then went to get a sandwich. I got really mad at him because it took him so long to come back and in the mean time they admitted me to a room and I was afraid he wouldn't find me. The nurse said he went home and he would be back. I thought about an hour had gone by and I was really upset about him leaving without saying goodbye.
The next morning I found out that the hour that went by was actually over 6 hours and that I was unresponsive for about three of it and disoriented for the rest. I didn't know who or where I was, why I was there or what year it was. I had a CAT scan, all kinds of other tests and meds, had been moved 2 or 3 times and finally admitted to my room at around 10pm. About 8am I woke up, didn't know why they admitted me, why they wouldn't let me up to go to the bathroom and why they wouldn't get me something to eat.
I'm still going through some issues with nausea, headaches and such, saw my neuro Monday and he's is not convinced that it's seizure related so tomorrow I get bloodwork and a visit with my primary. It just keeps going on and on. 3 weeks ago I was out running a couple miles a day with my dog and today I'm just barely getting through my day even laying down every couple of hours for a rest.
My suggestions? 1. Be leary of any change in medication whether it's supposedly "the same thing" or not. 2. Carry a card with all your Dr's names and numbers, any diagnosed medical issues, medications and dosages, and any allergies and reactions. I think it's MEDIDs that offers one online for free and it's pretty easy to fill out and print.
Oh and as soon as the medication patent ran out, the price dropped over $400. a month for the brand name meds so they put me through this for a savings of approx. $50.00 a month. Now, I get a notice that they will pay for the brand name drug. I guess my "trial" of the generic is over.
Trish
I'm not a big active preson, after walking for quite some time in the sun I soon started feeling dizzy the next few weeks, I was just switched to the generic and wondered if this caused the problem since I've been on lamictal for years. Pharmacist said excess sun light can cause problems with lamictal, to keep a diary if I'm still having problems and then see if I can get my doc to override for the name brand again.
Trish,
I really appreciate you sharing that experience, and so sorry you went through it.
Have any of your doctors said they definitely think it was an adverse reaction to the generic, or are they trying to tell you it's something else?
By the way, I luckily opted out of the switch to generic when I discovered that it's just not that much cheaper. (What a world.)
Thanks again.
~RG
RG,
If I can save anyone else from having to go through it, I'll be happy.
My Dr is pretty sure it was caused by the generic medication and I can't risk taking it again. He also said that he didn't expect any future seizures to be that bad . He also went to bat with the insurance co. and almost immediately got the approval for the brand name Lamictal. Now, I'm just hoping the my system starts getting back to normal soon.
Trish
I JUST SPOKE WITH MY EPILEPTOLOGIST, AND HE HAS A PATIENT WHO JUST HAD BREAKTHROUGH SEIZURES AFTER SWITCHING FROM LAMICTAL TO GENERIC LAMOTRIGINE. BEST TO STICK WITH A KNOWN QUANTITY.
I was wondering about changing to the generic as well. With most of my medications I really couldn't care less, but when it comes to things in my head that might be touchy I worry about sudden changes. I went to pick up my lamictal refill today and it had been switched to generic so I was just wondering if other people had switched without any problems. I found out that in the state I live in the pharmacy isn't suppose to switch an epileptic's anticonvulsant from brand name to generic without approval from the doctors office. Course my pharmacy sucks and argued that no such law existed, which is scary all by itself that a pharmacy wouldn't be up on the latest laws regulation medications, but that's something else. Anyways, have you found the discussion you were looking for yet?
That's a scary story about the pharmacy. It just goes to show you how much we all have to educate ourselves because we can't trust the medical establishment to do it for us!
Unfortunately, I still can't find that forum. I must say I am very disappointed in the forum system on this site. When I search the forums for "Lamictol," this one doesn't even come up! Anyway, someone on the lost forum insisted that the generic version was weaker (by 25%) and warned not to switch. Another recommended
switching slowly. My epileptologist's nurse (I can't seem to get Mr. Big Shot on the phone directly) claims that it's the same, no problem. Claiming that he probably just wrote "brand name only" on the prescription out of habit. Hmmm. So I'm having to get his office call my insurance company to okay the generic, which has been an unfortunate pain in the ass (ironic opposite of your experience). The people on the disappeared forum who said their doctors recommended sticking with the brand, well, I don't necessarily trust their doctors. Maybe I said it in my original post (which can't be viewed from this screen; another weakness), but many of those doctors are in bed with the pharma cos and are basically being paid to prescribe the expensive brand name.
Sigh.
*** One interesting thing Mr. Big Shot's nurse told me is that once I switch to generic, I should always stick with the same generic. Aparently there are or will be several. Just so my body is used to the one thing and doesn't get shaken up by differing inactive ingredients ***
SOMEBODY ON GENERIC LAMOTRIGINE WEIGH IN PLEASE HELP!
RGbrai,
The forum is not the best, but I think you may have searched for the wrong spelling of Lamictal. You spelled it "Lamictol" in your response. Try Lamictal with an "a" instead of an "o".
Cheers,
Andrew
Thanks, Andrew. I noticed that a little while ago. Duh. Luckily, I was able to correct the title of this forum so it will turn up in searches done by people who actually know how to spell!
to tell the truth changing to the generic doesnt make a difference its just cheaper
Have you done it?
Hi, I switched to the generic lamotrigine several weeks ago and I have not had any issues with it whatsoever. My sister is a pharmacist and I had her weigh in on it before I made my decision. She gave me the thumbs up. I have been happy with the generic version. Sorry to hear about the others who have not. I can offer empathy when it comes to medications. I have been switching prescriptions around for the past 3 years trying to find the right fit to make me seizure free.
I was switched to the generic verison in the hospital while I had my tonsils out and I ended up having 5 seizures before I got home and back on my regular meds. Therefore my doctor will not allow me to change to generic because they don't necessarily keep a level quantity in their pill. Each person is different with each med. Some of my med I use the generic but others I can't. Alot of it depends on what they use to produce the generic drug. I used on once that was produce and about 7 months later they changed it and I ended up going back to the name brand and having my dosage decreased. So take from where it stands. Every one and every thing is different.
My son was just switched to the generic produced by the company, Teva. He's been on Lamictal for several years. It's been about a week now and no problems. The insurance company said the brand name would now cost me about $200 per month (instead of the $18 copay in the past) if they even approve it (need affidavit from the neurologist). What a pain!
By the way, which state has this law about not switching seizure meds without doctor's approval?
I was switched to the generic also manufactured by Teva by my insurance company. The generic and the brand name are not the same. The generic didn't control seizures nearly as well as Lamictal or even the drug that I was taken off of- Depakote. Before any damage was done, I called my neurologist and was transferred back to the Brand Name Lamictal. The price is high but the damage that the generic would allow would cost more in one way or another.
My daughter was pushed into trying lamotrigine because of the insurance coverage we have. After talking to the dr who said there had not been a lot of issues with generic lamictal, she went on the generic. The insurance would not cover unless she tried the generic first. So after many years on lamictal and no seizures, she went on lamotrigine and within days started having breakthrough seizures.... She now is back on lamicatl after the dr. contacted the insurance co. and verified she was having seizures as a result of the lamotrigine.
She is now fully on lamicatl and no seizures again. BUT in the meanwhile she has had to give up driving for three months. The whole thing is so unfair. My daughter is in college and needed a car to get to a weekend job she was offered and had to give up that idea. It's a huge mess in her life.
We have filed a report with the FDA as has her pharmacist. We have also issued a complaint against the insurance for taking over her drs written prescription which said Brand name only, and forced her into this situation. As a result the state insurance commission has filed the complaint also and we will see what happens. She has lost so much because of this situation and it is SO unfair.
I hope nobody else goes through this and will see to it that the right people hear our story.
I was concerned when the Walmart pharmacy changed me from Lamictal to the generic. I asked them if that was something they could do and they assured me it was. I contacted my doctor and he said that if I wanted he would give me a lacmital (only) script. I told him that the generic saves me $35 a month and that I would stick with it. I then told him that I didn't want to lose my license if I had a seizure and he said, "You won't lose your license because I authorized that you can be on generic so the "own us" would fall on me."
So, I urge anybody who has switched to generic to contact their prescriber and make sure that if they do have a breakthrough seizure that they are not liable to losing their license. It's worth the phone call or (better yet) written consent.
Cheers,
Andrew
I went to the pharmacy a few weeks ago to pick up my lamictal and didn't realize they gave me the generic until i was out of my regular so i had to take it that night and the next morning. It made me sick, dizzy and blurred my vision. The price change is not worth it to me at all. When my doctor calls in or writes my script he has to specify brand name only but again its worth the difference for me. Good luck!