A place for newcomers to the site. Stop by and introduce yourself.
 |
|
|
Community Forum
Search Forums
To find a forum topic of interest, enter a username or keyword in the box below.
To find a forum topic of interest, enter a username or keyword in the box below.
Get started in the Community Forum by browsing through the Forum Topics or Recent Forum Activity, below. If you are logged in, you will see "Reply" links on individual discussions encouraging you to join the conversation! Alternatively, to start your own discussion, simply click the "Start a Discussion" link below. If you are not logged in, register now! Learn more about joining the Community Forum, including starting your own discussions, in our Community Forum Help Section.
Forum Index
Forum Activity
 cocoloco New - Are these seizures?
Hi all, I'm new. Been diagnosed with idiopathic generlalised epilepsy after having tonic-clonics...but...
I get stuck between sleep and wakefulness and feel "stormy" in my brain like I can't make it stop for a short while. Other times,...
|
 Kathy781 New - How do I harden up to this?
Hi everyone! I have had seizures since I was 8 years old. I have the
Complex Partial type where I sometimes fall and sometimes lose bladder
control and they are uncontrolled and unpredictable. I have tried to
work but was fired because of my seizures. No,...
|
 Sludge New - Family stigma
Hi,
I'm new to this forum and quite an oldie to the condition!
Through my experience and what I have read from our regional website there is a lot of people who seem to be getting stigma within the family. One can understand stigama...
|
 Lauren... New - no driving, no work, no school, now what?
I was MIS-diagnosed with Juvenile myoclonic epilepsy in february 2008 after I had my first grand mal seizure. I'm 22 years old trying to get through college...and ironically I want to be a doctor. now my whole life is on pause I can't drive I can't work because...
|
 1never... |
ddmb58 New - Need better understanding
I need help understanding what is happening with my son. He is 30 yrs old and was diagnosed with Eliplisy while he was in the service. They feel that an experimental shot he was given is what triggered the onset. This was 9 yrs ago. They were hoping...
|
 onemarvy New - Positive Stories Only
Hello everyone,
We went to see my daughter's neurologist yesterday and she was officially diagnosed with Epilepsy. She was also prescribed Keppra and has since started taking 250mg twice a day. We were told this was the lowest dose possible, so...
|
 RGbrai... New - Lamictal - switch to generic lamotrigine?
Hi, everybody. I just joined this site yesterday. I saw a forum where a few people were discussing transitioning to generic lamotrigine (just released) from Lamictol. But now I can't seem to find the forum. I'm considering the generic switch and am wondering...
|
 tarikata New - My 13-mo. old son w/ infantile spasms
Hi All,I am a new user to this website. My son was diagnosed with infantile spasms at 10 mos. old. He is currently 13 1/2 mos. I was very shocked with his diagnosis because he had been a healthy, normal...
|
chaerae |
debi3376 New - seizure disorder and pregnant.
I was wondering if anyone knowed the safest medicine for me to take while i am pregnant. i am taking depakote at the present and my doctor hasnt changed my meds yet and i was just wondering if someone might have some advise. thank you
|
 classy1g New - Chiropractic & epilepsy
I don't know if anyone has ran across this...but I had to go to my Chiro the other day, as I pulled my back out. While there, I told him that I was recently diagnosed with EP. He informed me that he couldn't adjut my neck, cause that...
|
Sobralia |
 WJM |
Overproof New - The Curious Case of the English Epileptic.
Hello everybody.
After a childhood of being passed between behavioural psychologists, then an adolescence of nobody being really interested, I spent the majority of my twenties getting out of my mind on various substances, ending up with...
|
 Anita_ |
shannan01 New - Is it really epilepsy or is it in my head????
Hi all,
A few weeks ago I finally went to my dr with what I assumed were 'Anxiety attacks' - after crying and telling him my story he suggested that what I was experiencing sounded more like Complex Partial Temporal Lobe seizures and so off to the Neuro I went.
|
epicat New - Keppra and Irritable Moods/Outbursts
Has anyone had problems keeping an even mood or temperment on Keppra? How do you handle stress at work?
I can being going along fine for a while and very happy, and then something little and stupid will just break me and get me very frustrated...
|
 quinte... New - spiritual healing
Has anyone had any experience with or know of people who have been cured of epilepsy by faith healing? Or have you or someone else prayed and not been healed? What was your experience like?
I know that it happens. Jesus and his...
|
gem New - Has anyone had this particular scenario?? ocular migraine meets ...
Over the past 15 years, I have had 3 similiar episodes as follows:
|
 E_Loner |
 VBwife New - Father just diagnosed
My dad was just diagnosed with epilepsy after a seizure this weekend. He had a seizure back in May when he was home alone, but they weren't able to diagnosis him at the time. I was just hoping to get some insight on what to expect and how to help (my sister...
|
 dm_creger New - Americans with Disabilities Act 2008
Here's the deal, fellow Americans - you are supposed to be protected
under the Americans with Disabilities Act of 1990... but there's a
problem with this because of judicial rulings over the years against
this Act.
The following links are from The Epilepsy...
|
jderry |
morgankx2 New - OK/TX pediatric neurologist needed--thinking of getting a second ...
My almost 3yo DD had her first obvious Complex Partial seizure in
January, and since has had lots of smaller episodes (staring, dizzy,
falling over, falling out of bed, etc.) but only one more large
seizure. She's on Trileptal, which I thought was helping,...
|
 copabeat New - Dilantin and weight loss?
Anyone else experience weight loss while taking dilantin? I am eating more than ever and still losing weight and can't seem to explain it.
I was a buck 95, now I am down to a little over 180 (to skinny) I really don't want to lose...
|
KatieF... New - I think I might have had my first seizure on Sat. July 19th
I originally posted this under new to epilepsy.com, but I thought that maybe this was a better place to post it.
I appreciate any help you can give me, thank you.
|
 iris1012 New - COLLEGE AND EPILEPSY
SO now im 18 and i have been accepted to 2 out of the 4 colleges that i applyed to. my parents said it was ok to apply anywhere just as long as it less than 5 hrs away so i did. and i made it into my top choice which is only 2 1/2...
|
 susang... New - vns removal
next month abby is to have her vns removed and replaced with the newer smaller model. she has had hers since 2000. i am seriously considering having it removed. she has had it turned down and there has been no change in seizure activity. she always seems to...
|
 amyoon New - My Hair is Falling Out
Hi,
I am taking 1500 mg a day of Keppra and 200 mg of Lamictal. Is anyone losing their hair? It's horrible. It's so vain but still it's hard to see my thick black hair fall out in the sink and I have maybe a fifth of what I used to have. Are...
|
 SassyM... New - Depression and Brain Surgery...What we should talk about and know
I have been thinking a lot lately about how so many people here have
experinced depression after brain surgery. It seems to be a subject
that is big but not largely talked about. I myself am experincing a
good amount of depression. I had brain surgery...
|
efullam New - Medication and Seizures in a 3.5 yr old girl
Hi all,
My daughter recently underwent brain surgery to help diagnose her epilepsy. Scalp EEGs had not been helping. Before the surgery, she had approx. 3 grand-mal seizures a week. She convulses, turns blue around mouth and eyes and drools heavily. ...
|
pennyh... New - what vitamins to take?
Hi everyone, I have another question for all of you. I have read in your conversations many times, that it is important to take certain vitamins to help control seizures. I would like to know which vitamins and...
|
 gkt New - 50 yrs old, epilepsy all my life, under control for years until ...
I believe my experience with epilepsy began when I was in third grade. I had the many tests and was put on a couple of different drugs, until it was considered treatable. When I turned 18, and hadn't had a seizure for some time,...
|
brainwarp New - dread seizure
HI,
I have heard many people on this board talk about having 'dread seizures'. Could someone explain to me what they are like? Thanks.
|
 Kaseio New - Inner crannial EEG
I have yet to meet anyone who has and as it gets closer I get more stressed out. They informed us of what could happen good and bad with this and the brain surgery that will follow. We are terrified. This right now is is only hope as he has coded a few times...
|
E_Loner New - WHAT OFFENDS THE E COMMUNITY
What words offend people with E. I myself laugh when I come across the thought of being offended if someone says, "Brainstorm." I have been an E for 42 years now and thinking of being offended make me laugh. When I was younger I corrected people...
|
wendylouu New - Need some advice for my Mother...
To make a really long story short my Mother is having something that we can't figure out what it is.
Two years ago she had something happened to her where her hands itch and burn and then she gets very confused and passes out. This time she lost all...
|
wendylouu New - Need some advice for my Mother...
To make a really long story short my Mother is having something that we can't figure out what it is.
Two years ago she had something happened to her where her hands itch and burn and then she gets very confused and passes out. This time she lost all...
|
wendylouu New - Need some advice for my Mother...
To make a really long story short my Mother is having something that we can't figure out what it is.
Two years ago she had something happened to her where her hands itch and burn and then she gets very confused and passes out. This time she lost all...
|
rayray... New - BRE
My 9-year-old son was diagnosed with BRE last week. He started having twitches in his face 4 months ago and only happend while he was just waking up but still groggy and tired. Last week he had a full grand mal seizure that started with the twitching in his...
|
 wargrass New - Panayiotopoulos Syndrome Diagnosis (Long)
I am so unbelievably frustrated by how long it takes to get the healthcare system moving. My dd is 6 and September 13th she had her first seizure. She has had 7 since then. It is hereditary, as I had seizures from 8 to 14.
We got...
|
 katfaerie |
dana828 |
TSG New - Pregnancy and Tegretol
Has anyone weened off tegretol in order to get pregnant? I'm scared to death to have a baby while on the medication. (I just feel that I'd be the one that has the complications/birth defects.) If so, how long did you have to wait to start trying? I'm...
|
cutty New - Smoking marijuana and drinking
I was just reading on this website all of the forums about drinking and smoking cigarettes and how bad they are for you. It didnt say anything about weed and I smoke weed maybe once a week or once every two weeks and is it bad for having seizures? Also if...
|
 tblake New - New to forum- need advice? opinions? comments?
Hello,
My name is Tiffany and I recently had my third seizure, so decided to try and learn as much as I can about epilepsy/seizures/medication/etc. My first seizure was five years ago. I was in class when it happened. I can't seem to think of...
|
 Seruzies New - HEY ASPARTAME EATERS AND DRINKERS
Hey you Coke Zero Drinkers, and other Aspartame drinkers or eaters, copy and paste, or do a search for this PDF file on the dangers of Aspartame:
http://form.douglassreport.com/reports/Aspartame.pdf
Can you say, "Class action Lawsuit?"
|
BIGair New - Soda (non-diet) and epileptic seizures
I have been epileptic now for over 6 years and I have been having seizures that are very regular. I need very much to make changes in my life and consequently, I am writing this while I am in a drug rehabilitation center. Not only have I been addicted...
|
becknell |