Group for all the women who wants to have childreen
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Groups
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To find a group or topic of interest, enter a username or keyword in the box below.
To find a group or topic of interest, enter a username or keyword in the box below.
Get and stay connected with other epilepsy.com community members who share your interests, concerns and passions. Create a virtual meeting place and deepen your connections using the Community Event Calendars, Group Discussions and Shared Member Blogs. Below, you can see the most recent Groups, and the latest activity within the Group Discussions. Browse around and if you don't see a Group you are looking for, log-in and click "Start a New Group." Your Group can be open to the public or private (by invitation only). There is no limit to the size of your Groups or what topics your Groups are based on! If you are not logged in, register now! Learn more about joining and participating in Groups in our Groups Help Section.
Group Index
| Discussions | Members | |||
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 New - Seizures after Weight Loss Surgery
Are you having seizures after your weight loss surgery? Join us!
| 0 | 1 | ||
 | 0 | 5 | ||
| 0 | 4 | ||
 | 1 | 6 | ||
| 2 | 8 | ||
 | 4 | 3 | ||
 Epilepsy Innovation Summit May 2008
Notes and Discussions Inspired by the May 7, 2008 Epilepsy Innovation Summit in Boston sponsored by CIMIT and NIO
| 1 | 4 | ||
 Northern Virgina Support Group
Looking for people in Northern Virginia (Parents/siblings/Patients) looking for Support Groups
| 1 | 5 | ||
Epi-teens
A Group for teens living with Epilepsy to share their experiences with others, and share advice with others
 | 1 | 10 | ||
 | 1 | 4 | ||
 living with epilepsy and ASD....autistic spectrum disorder
this is a happy friendly group to talk about living with A.D.H.D/ADD, Rett syndrome OR Aspergers syndrome this is for anyone who you know has got any of these conditions
| 2 | 5 | ||
 | 1 | 7 | ||
 Mormons Living With Epilepsy
This is where members of the Mormon faith can talk about how their faith in God and living in the Church has helped them deal with their epilepsy.
| 0 | 4 | ||
 | 10 | 44 | ||
Women and epilepsy
Women can deal with epilepsy in a different aspect than men. When it comes to the start of puberty to when menopase occurs. There are a numerous amount of effects that women can have due to hormones and becaus of childbearing. Due to this I wanted to start...
| 3 | 36 | ||
| 0 | 4 | ||
 Wearable Seizure Detection
Our group will explore technologies and developments to enable a practical seizure detector that can be used in everday life
| 6 | 9 | ||
Anti-epilepsy treatments: What's new?
Pipeline Group discussion on new developments in epilepsy treatments (including drugs, devices, gene therapies, etc.), and their potential to reach patients soon.
| 3 | 14 | ||
| 2 | 6 | ||
| 8 | 18 | ||
 | 20 | 26 | ||
| 2 | 22 | ||
| 3 | 15 | ||
 Experiences with Simple Partial Seizures
This group is for people to share their experiences with simple partial seizures with others.
| 3 | 28 | ||
| 0 | 4 | ||
 | 11 | 15 | ||
| 0 | 7 | ||
 Epilepsy due to Viral Encephalitis (an Acquired Brain Injury~ABI~)
Epilepsy due to Viral Encephalitis
| 2 | 7 | ||
Spousal support group
to learn more about how others support spouses w seizure disorders , common experiences, offer help + hope
| 8 | 19 | ||
 | 0 | 7 | ||
| 1 | 3 | ||
 | 37 | 79 | ||
| 1 | 39 | ||
| 2 | 6 | ||
| 1 | 10 | ||
| 8 | 10 | ||
 Antiepileptic Drug Screening
Discussion of preclinical models for screening potential antiepilepsy therapies
| 1 | 8 | ||
 | 10 | 29 | ||
Dating and Epilepsy
Men and Women ages 25 to 40 who live with epilepsy every day of their lives and are strong enough to survive
| 2 | 29 | ||
| 1 | 8 | ||
 Service Animals, Therapy Animals, and Pets
A group for those who rely on the human-animal bond to get them through the day.
| 5 | 17 | ||
 Living a life with Epilepsy
A place where people can come and talk about how they deal with their life on a day to day basis with Epilepsy
| 9 | 53 | ||
| 4 | 15 | ||
Bugs Today: epilepsy.com Website Feedback and Architects Group
Provide feedback and new ideas to make epilepsy.com a more effective resource
| 21 | 31 | ||
 | 0 | 6 | ||
Practical Living with Epilepsy Catalogue Project
A project to create a catalogue of products for safer living with epilepsy
| 2 | 6 | ||
| 2 | 19 | ||
 Community Mentors
A group of community members interested in being volunteer moderators and mentors to users of my.epilepsy.com
| 9 | 23 | ||
 | 1 | 4 |
Group Activity
 bookbabe New - does anyone experience irritability as a symptom of temporal lobe epilepsy?
Up until my TLE diagnosis, my periodic symptom of irritablility (not being cranky, more like stimuli or small annoyances make me feel like screaming) were considered to be symptoms of my bipolar II disorder. My neurologist indicated that they could be TLE...
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 sophia... New - poems... warning contains swearing...... sorry lol
these are my poems so have a read... post a comment and start your own poems too...
I have epilepsy, what does
that mean?
Does it mean I’m a retard;
a spastic?
Does it mean it come and
goes as it pleases?
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Meow |
rtgirl08 New - Need some advice
Hey everyone! My name is Emily and I'm 22 years old and new to this group. I was diagnosed with JME when I was 16 and was seizure free for 4 years so they took me off my meds and I was seizure free for almost three years until today. I was on my way...
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 Theresia New - PMT / PMS and seizures
HI to the other women.
I would be very interested to know whether other women have increased risk of seizures around certain times of the menstrual cycle....and any ways that others try to manage this...
For me, I am much more likely to have...
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 spiz New - Funny, Inspiring, Thought Provoking Sayings, Bumper Stickers, Etc.
Share a laugh or smile. Inspire.
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 phunn New - I need a little bit of info (ok, a lot) to help my beautiful nephew
My nephew just turned 20. He has Aspergers, ADD, and OCD. He is a gentle soul. He is struggling right now and his dad, his sis, and his favorite auntie are not quite sure what to do.
He is not doing anything, school, work, etc. I've talked...
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 gph |
 shawnd... New - ITS SO HARD
I am about to graduate from University and honestly it would only take a miracle. I keep having seizures during my exams and because of that i fail them, its so annoying.
I repeated a year because of this and i just don't want the same thing to happen...
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spiz New - If You Could, Would You?
If you could switch a day with a loved one so they would have to experience what would be a bad day in your life with seizures...would you and why?
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 findes... New - generic?
My insurance just charged me for using the name brand instead of the generic of Lamictal. I've only found the generic in small doses. I take 800mg a day....anyone else found larger doses in generic?
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 jenoz New - simple partial siezure or migraine eqivalent with vertigo
Hi everyone, I’m sorry this is such a long email, I needed to tell someone.And wondered what you thought?
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atu276 New - surgery
I'm new to your site I am having surgery on 8-8-08 in Redwood City. It's taken the Doctors 6 months to do all the test and finially decide to let me have the surgery. I have had seizures most of my life that is about 40yrs about 5yrs ago my meds just quit...
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Hisgrace New - Confusion to the Spouse
One of the topics I want to start off with is the spouse, as I'm a husband who is married and known my spouse since the year 2,000, My wife has obviously known about my epilepsy, yet, i just started having seizures reciently,Now we all have stories of our...
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 Colina New - Has anyone heard from?
Hi there friends!
I started this discussion because many times I wonder about members/friends who just seem to have dissapeared. Usualy there is one person out there who knows how they are doing and can pass on a message.
People do come and...
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 Liezl New - A Seizure that makes you psychotic, demonic, aggresive, violent!??
Hi all
A seizure that makes you violent, psychotic, aggressive, abusive?!?!?!?
No memory of the seizure whatsoever! please help me!
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Colina New - Summer updates/message board
Hello fellow Old Timers! Hope everyone's having a great summer. I'm home from my second holiday the Folkfestival. It was great minus some very bad weather but we are experienced and had all the proper rain gear. The shows were great and in our campsite...
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 Krayon... New - woo hoo i made it in !!
Wow,
Thanks Colina for inviting me !!
It finally..and I mean that FINALLY !! let me in here!!!
Cant wait to get going...dont know what I am doing yet but I will figure it out sooner or later lol. It looks great seeing some familiar names...
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mbskelton New - Our Story...my introduction
I'm joining as a spouse to my husband with seizures. We are very new to this (2 yrs) and just now getting some real testing done. It's been a very frustrating process. My husband had no previous history (he's now 27). Looking back he had some absent or...
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mbskelton |
mbskelton New - Introduction to myself
I'm joining as a spouse to my husband with seizures. We are very new to this (2 yrs) and just now getting some real testing done. It's been a very frustrating process. My husband had no previous history (he's now 27). Looking back he had some absent or...
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 JayBri... New - Introduce Yourself
I just thought we might want to inroduce ourselves, so if you feel like it, here's the place to do it! I'll start.
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spiz New - Never-Ending Sentence
I'll start a sentence then the next person makes the first word or two of their sentence finish mine while making an unfinished sentence of their own to be finished and added to by the next person, etc. Let's make it fun!
-Spiz
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 mick02 New - Bug Reporting
Hi All!
Let's use this discussion to start discussing the bugs that should be addressed:
- Make the site faster
- In Groups, allow moderators to transfer ownership of the Group
- Group Calendars should feature ONLY that Group's content, not all events
-...
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Colina New - Subscribe via e mail
I've been wondering since the site change why I get very few e mails letting me know when a post or reply was made to one of my entrys. I used to get them automaticly before and have just now realized that for every forum topic or blog you have to use...
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church New - Just added myself to this group and need help in getting answers.
Hey my name is Lindsey and I am from Canada. I don't know if there are many Canadians on this site but if so awesome and to the rest of you thank-you for welcoming me on. I have a question for everyone and am hoping to find an answer. Today I was at...
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 ninabva68 New - Kids with epilepsy
Hang in there. All the parents that have kids with epilepsy. We have to hang together. The rest of the world cannot really understand how you feel when you hold your little shaking kid.
That said we need to remember many kids out grown epilepsy....
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Chriss... |
 ValNew... New - Parents of Encephalitis survivors
Here is a wonderful support group of caring, knowledgeable parents of children who have survived (are surviving) encephalitis. Many of their children now have Epilepsy.
http://health.groups.yahoo.com/group/Nceph2Group/
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bluebe... New - Driving
Hello,
I am new to this board. My husband has very controlled epilepsy but I am wondering what I should do if I'm in the car, he's driving, and he has a seizure. Can anyone help me with this?
Thanks.
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church Just added myself to this group and need help in getting answers.
Hey my name is Lindsey and I am from Canada. I don't know if there are many Canadians on this site but if so awesome and to the rest of you thank-you for welcoming me on. I have a question for everyone and am hoping to find an answer. Today I was at...
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spiz Embarassment of E
Need a place to vent, talk about the embarassment of E - personal or seen by all? Here's the place for when it gets to be to much to hold it all in.
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 whatnext Adults with LGS
I'm looking for other adults with lennox gastaut syndrome. My son is 20 years old now and still has seizures, just when we thought we had seen every type of seizure, from drop attacks to grand mals, he surprises us with another type. The newest starts as...
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 pbugbee |
 Sunflo... Transporation
Can't drive to work? This may help you catch a ride!
http://www.nuride.com/nuride/public/How_it_works.jsp
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 IRobot The best brand of gutiar
What do you think is the best kind of gutiar? My favorite accustic is a Gibson, my favorite electric is a Fender (strat!!), and my favorite bass is a Martian. Even though I can't stand Martian strings.
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 Omega Honey, we need to talk... without triggering seizures.
How can partners talk to each other? When the stress of talking through problems with your partner triggers epileptic seizures, what can you do?
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Omega 2 GRAND-MALS AND A COMEDY ROUTINE
My husband had a grand mal seizure at the local video rental shop. The shop clerk called me (luckily he new exactly who to call as he was also renting our spare room at the time) I drove over to go get my husband and as we were helping him up he starts...
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 reba Did I actually do that ?
Heres one story that I think was probably one of the silliest moments I had after having a seizure. Whenever I would come out of a seizure, I would act a little loopy. I always had Auras before hand, but I wasnt aware until after I would come out of it and...
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Omega Honey, we need to talk... without triggering seizures.
How can partners talk to each other? When the stress of talking through problems with your partner triggers epileptic seizures, what can you do?
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Omega Honey, we need to talk... without triggering seizures.
How can partners talk to each other? When the stress of talking through problems with your partner triggers epileptic seizures, what can you do?
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Omega Honey, we need to talk... without triggering seizures.
How can partners talk to each other? When the stress of talking through problems with your partner triggers epileptic seizures, what can you do?
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 mystic... Gastic Bypass and Seizures ?
I had gastric bypass in 2002..all has gone well except for an ulcer that is cleared up. Loving it! Now I'm having seizures, one for sure, possibly a second and third one. Still being diagnosed. I'd like to hear more bout this subject. Never connected the...
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mystic... Gastic Bypass and Seizures ?
I had gastric bypass in 2002..all has gone well except for an ulcer that is cleared up. Loving it! Now I'm having seizures, one for sure, possibly a second and third one. Still being diagnosed. I'd like to hear more bout this subject. Never connected the...
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mystic... Gastic Bypass and Seizures ?
I had gastric bypass in 2002..all has gone well except for an ulcer that is cleared up. Loving it! Now I'm having seizures, one for sure, possibly a second and third one. Still being diagnosed. I'd like to hear more bout this subject. Never connected the...
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mystic... Gastic Bypass and Seizures ?
I had gastric bypass in 2002..all has gone well except for an ulcer that is cleared up. Loving it! Now I'm having seizures, one for sure, possibly a second and third one. Still being diagnosed. I'd like to hear more bout this subject. Never connected the...
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 neatsy27 Some times people are so dumb
I have been with my boy friend now for a year,we where going to be married but not now.his mother hates me and guess why ?becouse I have EPILEPSY she thinks I m going to couse him to much stress.And some days I dont fell well and cant go to family events she...
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spiz Guess The Meaning...
Here's a game where we guess the meaning of acronyms made up by us. Please do not leave any that include the use of offensive words. Come on and join the fun!
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IRobot music
I'm going to put a line from a song and somebody guess the song. Easy enough?
Here's an easy one to start:
"I want to hold your hand, i want to hold your hand, i want to hold your hand!"
1960's rock- British invasion, that really...
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IRobot Awful Songs
What is the worst song you've ever heard? The worst one I've ever heard would have to be a song by Billy Ray Cyrus called Achy Breaky Heart. It is very annoying, and the words are the same the whole time... My heart, my achey breaky heart... Ick...What do...
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