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UPDATED: Tue, 08/19/2008 - 8:16am

  • Epilepsy First Aid
  • Seizure Medication
  • Animation of a Seizure
  • Seizure Diary
  • Find a Doctor
  • Epilepsy Centers
  • Clinical Trials
  • Event Calendar

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My.epilepsy.com Community

Registration Has Its Privileges!

Welcome!  We invite you to look around and enjoy the many new features membership in the my.epilepsy.com Community has to offer, including:

  • Epilepsy.com Monthly e-newsletter:  Spotlight is bursting with recent epilepsy news, updates on seizure medicines and advances in treatment options and new features and events on epilepsy.com.
  • Your own personal web page:  Share your story, your photos and more.  This is your page!
  • Forums:  Join the latest discussion on the hottest topics.
  • Groups:  Gather your friends and start a private group, or make it public and invite other community members to join and make new friends.
  • Blogs: Here's your opportunity to be self-published! 
  • Chat:  Meet others virtually and talk in real-time.
  • Find People Like Me:  Connect with other members based on shared interest, hobbies, epilepsy treatments and more.  Talk about baseball, music, share recipes, or connect with other parents who have children with epilepsy.  You name it!  Someone is looking to meet someone like you.
  • Your own online Seizure Diary:  Forget about looking for your paper records.  Now, you can keep track of your types of seizures, medications, other epilepsy treatments, side effects or other concerns online.  Organize your healthcare contacts (doctors, nurses, pharmacy, hospital...).  Know when you need a prescription refill or have medical appointments.  Create a printable report for your own use, and take to medical appointments.
  • Wiki:  Share your experiences and expertise in epilepsy, and help expand the discussion around important topics.
  • Community Calendar:  Learn about and share upcoming events in your area, and invite others in the my.epilepsy.com Community to participate!

Getting started is easy. Click below on "Register now!", and become part of our growing family.   Whatever your interest, my.epilepsy.com Community welcomes you home.



Title Posted
my.epilepsy.com Updates  
epi_help
Ted Kennedy had a seizure today and I think this is our opportunity  
Orien2
Please Help....  
Dustin82
What are the unmet medical and social needs of people with epilepsy?  
epi_help
My 15 yr.old has had 3 tonic clonics in the last 6 months  
HBsmom
Anyone with similar situation - PLEASE HELP  
Nuno Pedrosa
Question for VNS patients: Should I be concerned?  
suebear
Help and advice...pain a week after wada  
SassyMindy
New Search Bars!  
epi_help
Re: Support Group  
jadedangeleyes
View all Forums

Title Posted
Are these seizures?  
cocoloco
How do I harden up to this?  
Kathy781
Family stigma  
Sludge
no driving, no work, no school, now what?  
LaurenG1211
I Have Epilepsy and I Hate My Life...  
1nevermore
Need better understanding  
ddmb58
Positive Stories Only  
onemarvy
Lamictal - switch to generic lamotrigine?  
RGbrainstorm
My 13-mo. old son w/ infantile spasms  
tarikata
Anxiety  
chaerae
View all Forums

Title Page Views
my.epilepsy.com Updates  
epi_help
topamax and weight loss  
alexia mom
kepra  
brian mattingly
Possible cure for absence seizures  
pdl1
Epilepsy and marijuana  
cjad234
Sexual Side Effects  
George R
How exactly do aura's feel  
WendyBendy
MEDICAL ALERT I.D.'s  
picnupthepcs
Over 40 Different Types Of Seizures - Revised  
spiz
electrical shock in head?  
Maggie
View all Forums

Title Posted
Webmaster's Blog  
kdredske
Epilepsy (LGS & APS) Survey  
HealthResearcher
News Headline: Local implant could buzz sufferers and beat seizures  
seizure free
View all Blogs

Title Posted
Bury my love  
lxwwei87
What is love?  
lxwwei87
My Kids Think I Am Nuts...........  
banffgirl
Sassy's Journey Continues.....  
KrayonsRmine
starting to wean more  
kroiz
"I Get To Tackle!"  
crashllama
How it all started  
budgetwhiz
I am the Queen of Photosensitivity  
stephsobota
I AM ON A SEIZURE STREAK  
banffgirl
Small Mountains and morning coffee  
jayenmontana
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Title Page Views
Inspirational Quote - My Own Personal Inner Thoughts  
Butterflygrl
my partial complex seizures  
Zanna1211
Topomax... The Dreaded.........  
Dr Jason
Brain Zaps, tics & twitches  
JudiS
side effects of phenobarb.  
pksmom
Feeling Sick  
JBJ1984
Tegretol XR and ANXIETY meds  
Butterflygrl
How can you tell if a sleep seizure happens?  
epl_controller
Nonepileptic "Events" vs. "Seizures"  
teft
TYLENOL, AEDs & SEIZURES  
cmscribbles
View all Blogs

Title Posted
STILETTO  
STILETTO
View all Stories

Title Posted
why im here  
ka5drd
Looking for Help  
gweb
A TOTAL CHANGE IN MY LIFE  
janemary
Who knew!?  
DebbieD
Why me?  
qhodges
just the beggining  
arw123
Temporal lobe epilepsy  
lfvance
My 29-year old daughter has epilepsy...  
mmorales515
Nobody but Us Really Understands Epilepsy  
sawyerheights
My Story with epilepsy  
irvkay
View all Stories

Title Page Views
Jessica Roiz  
kroiz
Seizure Cat!  
wenko
my story  
snoby
Always Have On Clean Underwear  
crashllama
Kelly's Life With Epilepsy  
kjcanada1979
What My Seizures Are Like......  
javaman
my brain has died a thousand deaths...........  
banffgirl
Crystal's story  
Crystal11
Nocturnal grand mal seizures (primary generalized epilepsy)  
karalyeva
How I found out I hade seizures  
HilaryWeinberg
View all Stories

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What is the most important issue that you'd like your doctor to talk with you about?

Possible side effects of medicines
27% (29 votes)
How people respond to medicines differently
8% (9 votes)
Different medication options
13% (14 votes)
Support groups and epilepsy websites
7% (8 votes)
Social services for help with jobs, financial help and transportation
16% (17 votes)
Other treatments like surgery
10% (11 votes)
I don't need more information from my doctor
10% (11 votes)
Other
8% (9 votes)
Total votes: 108

View results
View past poll results