Epilepsy Pipeline Community Day
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Watch the 2020 Community Day SessionsCommunity Day 2020: Watch Now
Organized by, and for, people affected by epilepsy, the Epilepsy Foundation held the 2020 Community Day virtually on August 29, 2020. Watch the full day of sessions to learn about what’s new in epilepsy treatments, genetics, how you get involved with the Epilepsy Foundation, and how we can take action together.
Topics covered included:
- Telemedicine: How We Got Here and What’s Next
- Genetic testing and epilepsy
- Sudden unexpected death in epilepsy (SUDEP)
- Cannabidiol and making informed choices
- Getting involved and making change in your community
- And more
Agenda
Times are eastern time (ET).
Welcome and Introduction – 11:00-11:10 A.M.
- Jon Scheinman, Director of Youth Programs, Epilepsy Foundation
- Laura Thrall, President & CEO, Epilepsy Foundation
Understanding the Epilepsies & What’s Next in Epilepsy Treatment – 11:10-11:55 A.M.
- Charles Kilbourne, MPA, Board Member, Epilepsy Foundation of Northern California
- David Ficker, MD, Neurologist, University of Cincinnati Health
- Jacqueline French, MD, Chief Medical and Innovation Officer, Epilepsy Foundation
Genes and Epilepsy: Understanding the Basics – 11:55 A.M.-12:40 P.M.
- Shannon Abdul Wahab, Executive Director, Epilepsy Foundation Orange County
- Elaine Wirrell, MD, Director of Pediatric Epilepsy, Mayo Clinic and Co-Editor in Chief of Epilepsy.com
- Kim Nye, TESS Research Foundation, President and Co-Founder
Wellness Break by the Wellness Institute – 12:40-12:45 P.M.
Telemedicine: How We Got Here and What’s Next – 12:45-1:30 P.M.
- Sue Herman, MD, Director of Epilepsy Program, Barrow Neurological Institute
- Charuta Joshi, MD, Pediatric Neurologist, Children’s Hospital Colorado
SUDEP: Knowledge is Power – 1:30-2:15 P.M.
- Sally Schaeffer, Senior Director SUDEP Institute, Epilepsy Foundation
- Sam Lhatoo, MD, Director, Texas Comprehensive Epilepsy Program, UT Health
- Victor and Libby Boyce, The Cameron Boyce Foundation
Wellness Break by the Wellness Institute – 2:15-2:25 P.M.
Cannabidiol: Making Informed Choices – 2:25-3:10 P.M.
- Freeman and Leanna Dando, TSU representative for the Central & South Texas office
- Anup Patel, MD, Section Chief of Pediatric Neurology, Nationwide Children’s
- Abbey Roudebush, Senior Manager of Government Relations and Advocacy, Epilepsy Foundation
Getting Involved and Making Change – 3:10-3:55 P.M.
- Jon Scheinman, Director of Youth Programs, Epilepsy Foundation
- Britt Dorfman, Government Relations and Grassroots Associate, Epilepsy Foundation
- Miles Levin, Filmmaker
Closing Remarks – 3:55-4:00 P.M.
- Jon Scheinman, Director of Youth Programs, Epilepsy Foundation
Thank You to Our Sponsors
Thank you for your support in making this event a success and your commitment to the epilepsy community.
Resources
Epilepsy Centers
Epilepsy centers provide you with a team of specialists to help you diagnose your epilepsy and explore treatment options.
Epilepsy Medication
Find in-depth information on anti-seizure medications so you know what to ask your doctor.
Epilepsy and Seizures 24/7 Helpline
Call our Epilepsy and Seizures 24/7 Helpline and talk with an epilepsy information specialist or submit a question online.
Tools & Resources
Get information, tips, and more to help you manage your epilepsy.