Need help in answering your questions about epilepsy? Read responses to the most frequent questions posed by our community or see answers to topics that interest you. Not seeing an answer to your question? Join this moderated forum where you can ask our epilepsy resource specialist questions dealing with epilepsy. We select questions of greatest interest and educational value to all our readers. We encourage you to contact your own health care provider for individual medical advice. We cannot provide second opinions or make specific recommendations regarding therapy.

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Gev New - Ny boy is havin seizures, help please Created by Gevat8/1/08 - 4:31 am Answered by epi_helpat8/6/08 - 3:46 pm My boy is 10.5 now.  He had his first seizure  2.5 years ago (march 28 2006).The second July 8 2008 and third 18 days after the second July 26 2008. We started taking convulex, prescribed by epilepсы specialist, only after third one. Based on...
longni... How often is 'frequent' and how long is "prolonged' for seizures? Created by longni...at7/13/08 - 9:27 pm Answered by epi_helpat7/22/08 - 8:11 pm My 7yo has been dx with BRE (Benign Rolandic Epilepsy), although he has additional symptoms at times. His main intense seizure period involving speech arrest,, throaty sounds, shaking of face and arm lasts about 1-2mins, but sometimes speech arrest...
juliewavw I am at 19, 20, and lately 29 in my dilantin levels Created by juliewavwat7/15/08 - 8:59 am Answered by epi_helpat7/22/08 - 7:26 pm My dilantin levels seem to be going up. I am on comadin since Feb. My levels have been since early July a 19, 20, and now 29. Are these wide fluctuations normal.  I would like to try to go back way down to 15 or less.  I have problems with feeling unsteady,...
sunset New - 85 lbs and dropping w/ seizures on the rise and help! Created by sunsetat7/21/08 - 2:06 am Answered by epi_helpat7/22/08 - 7:14 pm
Lynne ... Seeking Insurance Covering Epilepsy Created by Lynne ...at7/17/08 - 3:32 pm Answered by epi_helpat7/20/08 - 6:16 am I am working now for the first time since being disabled from surgery for epileptic seizures. My life is so much better. I work fulltime now but I need insurance that will cover epilepsy. My employer will help me financially with the insurance if I can find...
my2blu... Tegretol Side Effects Created by my2blu...at7/18/08 - 7:25 am Answered by epi_helpat7/20/08 - 6:07 am I have been on Tegretol 400 mg a day for 3 years and never experienced any side effects.  Now because of the partial seizure symptoms re-appearing, my doc has increased to 600 mg a day (200 mg 3x day).  All of a sudden i have dizzy spells, lethargy, blurred...
Alissa... How do I know if my child's behavior is "normal" for his age? Created by Alissa...at6/13/08 - 8:46 am Answered by epi_helpat6/27/08 - 7:48 pm I have a 4-year old son who was diagnosed with complex partial seizures when he was 2 years old.  For the past 8 months, his seizures seem to have been controlled by Trileptal, but now he is having brief seconds where he "feels yucky" in his head. ...
kslone PLEASE HELP! Daughter's Abdominal pain caused by Zarontin? Created by ksloneat6/27/08 - 8:31 am Answered by epi_helpat6/27/08 - 7:03 pm My Daughter started Zarontin (the generic form, anyway) back in February this year. Please help! My daughter has been having abdominal pain and soft stools and will hardly eat anything. (for two weeks) and the last few days her abdominal pain is almost...
MSCORR... SO, NOW THAT I AM "SEIZURE-FREE" ON DILANTIN... Created by MSCORR...at6/15/08 - 7:49 pm Answered by epi_helpat6/24/08 - 11:05 am HOW DO I GET INTO A CLINICAL RESEARCH TRIAL (KEEPING IN MIND THAT DUE TO THIS ILLNESS AND MIS-DIAGNOSIS AS A CHILD, I AM NOW BROKE, HOMELESS, AND ON SOCIAL SECURITY DISABILITY INCOME DUE TO "PSYCHIATRIC" REASONS?
The_Dr... what is going to happen? Created by The_Dr...at6/22/08 - 1:56 pm Answered by epi_helpat6/24/08 - 10:43 am on july 9 I'm going to get a VNS implant put in. I was wondering if anyone could tell Me what I should Be expecting to happen and what to look out for after I get the implant in. cause the nuerosurgen told Me that they are going to turn the implant...
csdon Urgent Advice Created by csdonat6/17/08 - 5:36 am Answered by epi_helpat6/18/08 - 7:50 pm To the doctor concerned: My name is Claudia, I live in South Africa, and was diagnosed with frontal lobe epilepsy after a viral encephalitis in 2007. I was subsequently put onto Lamictin 125mg x2 daily. We were on holiday recently and I happened to...
wntr89 My doctor is adding Keppra for seizures in addition to depakote? Created by wntr89at5/21/08 - 8:04 am Answered by epi_helpat6/2/08 - 6:59 am
denie Thickened Cortex Created by denieat5/21/08 - 12:31 pm Answered by epi_helpat6/2/08 - 6:47 am I'm new to this website and have no idea what I'm doing so any insight on how to find more info on my case would be great.  Thickened Cortex on MRI?  I've had E (complex partial) for 10 yrs, starting when I was 24.  My neuro at the time sent me for an EEG,...
Birdie Birdie Created by Birdieat5/21/08 - 3:55 pm Answered by epi_helpat6/2/08 - 6:24 am Do you have a video or pamplet that shows what Video Telemetry is?  I've been Epileptic for 48 yrs., and have never heard of it.                              thebirdie@centurytel.net
kroiz infant seizures Created by kroizat5/26/08 - 11:11 am Answered by epi_helpat6/2/08 - 6:08 am My 4 month old has been having seizures since birth.  They are usually tonic-clonic, lasting 2-4 minutes in a series of 2 or 3.  Sometimes she has absence seizures, also in a series of 2 or 3.  she has 3-4 of these episodes a month. This is something new....
Lee050... LOC & laughing Created by Lee050...at5/22/08 - 1:04 am Answered by epi_helpat6/2/08 - 5:57 am Recently, when I laush A LOT, I lose consciousness, somewhat.  I wonder if this might be a type of seizure - something I have not had in 20 years (whe nI was 3 years post TBI).  Lee
forev25 Side effects from lamictal Created by forev25at5/26/08 - 8:13 pm Answered by epi_helpat5/30/08 - 7:15 pm
amy bo... Surgery w/ hemophilia Created by amy bo...at5/18/08 - 7:35 pm Answered by epi_helpat5/19/08 - 5:16 am Hello! My 6 yr old son has severe Hemophilia & Epilepsy. The docs are now discussing surgery as one of the options,any info on these two? Thank you, Amy
pixie_mu When is it no longer febrile seizures? Created by pixie_muat5/10/08 - 8:28 am Answered by epi_helpat5/13/08 - 8:19 pm My son is 4 now. He had his first febrile seizure when he was about 11 months old. He had his second a year later. Then he didn't have another one for a year and a half. Now, he had 4 in 6 months time. (This brings the total to 6 seizures, all with a fever.)
ceola help va. Created by ceolaat5/12/08 - 8:34 am Answered by epi_helpat5/13/08 - 8:01 pm hello,is feeling faint almost going down extremly weak just brief? can seizus play with your emotions?and when I has eeg sleepdeprived the wire attachec tojust below color bone was firey red the attened was conecerned as well as I she ask did I have sensitive...
confus... Amusement Parks Created by confus...at4/21/08 - 9:31 am Answered by epi_helpat4/25/08 - 5:36 am My 14 year old daughter was diagnosed about 8 months ago with JME. She was put on Keppra and had a breakthrough grand mal seizure. After a video eeg, the doctor determined that she wasn't responding the Keppra and we started to put her on Lamictal with the...
redted... vns and autism Created by redted...at4/24/08 - 10:53 pm Answered by epi_helpat4/25/08 - 5:03 am My son has PDD (an autism spectrum disorder) and still has a breakthrough seizure about every 2-3 weeks after being on Keppra, Lamictal, and Zonisamide now at their maximum dosages...he is 19 years old...the Dr. says he has not had anyone with autism get a...
kenster1 Diagnosed with Psychogenic seizures Created by kenster1at4/12/08 - 8:47 am Answered by epi_helpat4/14/08 - 10:39 am
Kaye Petechiae Created by Kayeat4/14/08 - 4:36 am Answered by epi_helpat4/14/08 - 9:51 am Hi, My son developed tonic/clonic seizures at 15 and when he went to uni at 18 he took himself off all medication. Now 22 and in his last few months at uni, he has had two seizures in his sleep within a month. He's started taking Eipilim again but it obviously...
Rosiem... Down-side of Surgery? Created by Rosiem...at3/28/08 - 10:37 am Answered by epi_helpat3/29/08 - 6:21 pm   Hi,   I'm contemplating brain surgery (reluctantly) with no job experience, no education (thrown out of 9th grade due to seizures).    I've heard several good sides but have also heard several bad about having it at age 42.   What are...

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	Questions
General Health and Women's Issues Effects of seizures or treatment on general health, bone health, sexuality, pregnancy and menopause.	14
Finding Help How to find or access help in the community, talking to health care providers and navigating systems.	19
Insurance Issues Concerns and questions about insurance and medication coverage	3
Lifestyle and Stress Management Managing lifestyle and stress to help seizure control and general well-being.	2
Managing Social Issues Impact on family, relationships, work, leisure and independent living.	7
Medication Management Information about medications, practical tips, memory aides and problems taking meds.	35
Open Forum Your concerns, ideas, or questions!	5
Parents and Epilepsy Parenting children with seizures or management issues for parents who have epilepsy.	14
Products and Resources for Epilepsy Products, equipment, and resources for people with epilepsy, their loved ones and caregivers.	3
Safety Management Safety concerns, seizure first aid, and ways to prevent or lessen risks.	2
Sorting Out Seizures Questions about diagnostic testing or concerns.	45
Surgery, Devices and Other Treatments Questions about surgery, devices, diet or other non-medical treatments.	9
Thinking, Learning, Mood, Behavior Questions about effect of seizures and treatment on learning, mood and behavior.	7