Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Diagnostic Dilemmas and Testing

Needing help for my baby

06/2016 | 1 Comments

This is my first post on here so im not sure if i am posting right. I have been researching my sons condition endlessly online. I really don't know...
Staring Spells

06/2016 | 1 Comments

I am new to this board. My daughter, not yet 2 years old, was diagnosed with staring spells. She will just start staring off with a vacant expression...
EEG report from my 3yr old.

06/2016 | 1 Comments

Hello all, my 3 yr old just has been diagnosed with epilepsy,his symptoms started when he was 2 (Absence, dropping). We got a copy of his EEG report...
Can CT Scan detect Epilepsy?

06/2016 | 1 Comments

Hi, My spouse had a seizure and we suspect it might be epilepsy. We visited Primary Care physical who referred for CT scan of the brain. We have...
Speech temporal lobe

05/2016 | 0 Comments

I have temporal lobe epilepsy on my left side sometimes I cannot talk during the seizure and sometimes I can't stop talking during a seizure. Has...
Hypoglycemia or Something Else?

05/2016 | 1 Comments

I have had hypoglycemic episodes in the past that have sometimes brought me close to unconsciousness. However, during one episode six years ago, I...
Confused about child's EEG results

05/2016 | 1 Comments

Several months ago my 2 year old child was referred for a sleep deprived EEG, which was done at a local children's hospital. She has diagnoses of 1q21...
Medication not working. epileptologist?

05/2016 | 1 Comments

Since my medication (five different ones) aren't working, my neurologist sent me to an epileptologist. Has anyone been to one before, and can they...
Wada Test Questions

05/2016 | 0 Comments

Hello everyone. I am a philosopher who is researching varieties of conscious experience. I am interested in hearing/reading personal reports about the...
Deja Vu Episodes Normal EEG

05/2016 | 1 Comments

Hi everyone, it's my first time posting here. I'll try to keep it short. I experience deja vu which I know most people do in their lifetime but I have...
Hypoglycemia or seizure?

05/2016 | 1 Comments

Hello! I have some questions concerning episodes I have had over the years. I was diagnosed with hypoglycemia 6 years ago, after having fainting...
Epilepsy and Narcolepsy EEG readings

05/2016 | 0 Comments

Hi everyone, this is a long confusing story about my 7 year old son's journey. I'm just hoping that MAYBE one person out there has had a similar...
So fed up with doctors!

05/2016 | 2 Comments

I was diagnosed with seizures in October 2015, that was after years of not knowing what was going on. I thought I had finally found out why I was...
Could this be something else?

05/2016 | 1 Comments

I was diagnosed with Partial Complex Seizures about 6 months ago, because I was having intense dejavu all of the time. Often the dejavu was coupled...
Help!! Very confused and scared

04/2016 | 0 Comments

I am a 20 year old female, very active and healthy. This morning, I woke up with a slight headache or heavy hungover like feeling in my head. I went...

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.