sounds trigger seizures?

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I havent been diagnosed with epilepsy or with having siezures, even though I have been having what I call siezures for the last 6 years. I am going for an MRI next month, for the first time. I have had an eeg done 2 years ago and it came back normal. My question is...Can a sound or maybe even a certain song trigger on a siezure? I ask this because it seems like a sound or even the sound of a word makes me feel like I am going to have a siezure. I feel like a anxiety feeling inside me happens before I accually go into the siezure, when the siezure happens I am awake but unaware of what is going on around me, everything freezes and sounds become muffled and I cant understand what I hear. Another thing my husband has told me is when I feel like I am going to have the siezure and I try to warn him, I dont make any sence in what I am saying and sometimes it somes out like I am shouting. I dont know that I am not making any sence or even that I am shouting it, to me I have said " Im having a siezure" clearly. He also said my eyes get huge and my pupils dialate, also I turn white as a ghost. I think my siezures last for a few seconds, but he has timed them and sometimes they last as long as 5 minutes. After the siezure I dont remember anything prior to the siezure or anything during the siezure, all I know is that I had one. I also feel sick to my stomach and sometimes throw up afterwards, I get a extreme hot flash sometimes, but mostly I am worn out and extremely tired for about and hour or two after the siezure. A co-worker said that her brother has twilight siezures and what I described sounds identical to his siezures, he also said a certain song has brought on his siezure, which is what I have experienced twice now. I dont remember the song or even the words to the song, by the time I come out of the siezure the song has long been over. I have a siezure about 2-3 times a month. Does anyone have any simular triggers as I do? Does it sound like what I have is accually a siezure? Or am I just going crazy? I have been told maybe it is a panic attack, but I dont know why I would be having those because I am a laid back person with no or very little stress in my life. I have also awaken to a siezure, I dont think a panic attack happens in your sleep. Thanks for any input.

Comments

My seizures went away for 9

Submitted by Twosons1908 on Thu, 2018-04-12 - 09:53

My seizures went away for 9 years,but now I started having them again.It seems like a sound or when a train passes it triggers the seizures.Before I had use too space out. But I also have a new position at work which is very stressful and lack of sleep.

I just read what you wrote,

Submitted by Mustangmari88 on Wed, 2019-01-16 - 09:45

I just read what you wrote, and I could have written it myself! It is identical to my experience. What is even more uncanny is your description of warning your husband that you are undergoing this experience matches mine perfectly. I've learned over the years that this repeatng-song-lyric is a warning, and I never ignore it; I immediately take one dialatin and avoid the grand mal seizure. I've reported it to doctors, and they don't seem to give it any consideration. I wish neurologists would listen more to their patients, maybe they could develop cures, rather than drug treatments, for their patients.

I have almost the same issue

Submitted by kenht10 on Sun, 2020-02-16 - 12:57

I have almost the same issue & i found out the Frequency of the sound triggers the seizure then the migraine headache, All new devices smart phones, direct tv boxes blueray players hi-def tv, computers made after 2001 put out digital sound from 96k to 192k triggers what it feels like live electric wire touch my left side of the brain the longer i hear that frequency sound the stronger seizure & migraine gets.No medication work with my epilepsy so i had a section of the left side of brain removed. to stop the seizures. & months later after the surgery I went to 30 minute seizure from a head injury on the same side they did the surgery. That cause brain damage I can only listen to analog sound 48k = old radios, vcrs, crt tvsets computers with a sound card 16bit 48k this will not trigger my seizure, as soon i hear smart phones digital radio in cars, cable boxes, firestick, roko boxes etc any device that puts hi frequency 96k to 192k i start going to seizure, since they removed the left side i am aware my going around me & can still talk the seizure only effect my face, eyes - my eyes will contract & stay closed the nerves in face feel like electricity going through my face my lips will move up & feel like very week i can pass out anytime. The longer I hear the stronger it gets - as soon the sound stops I will have seizure & migraine for hours until it subside in a quiet inviroment - i can't goto parties, bars, restuarants including dentist, epilepsy doctors etc including handicap buses to take me to work do you believe this they will not turn off there tv sets or car radios for me I keep telling them in 1 - 2 minutes i will have a seizure. All my family relatives don't want no of me there devices are more important then life - while i am in there car they will play the radio & put me into seizures while they take me to the doctor. All relatives uncles, cousins, aunts, brothers, sisters, etc don't won't no part of me. I have nobody to help etc except my neighbor who will take me to the stores etc..

I have almost the same issue & i found out the Frequency of the sound triggers the seizure then the migraine headache, All new devices smart phones, direct tv boxes blueray players hi-def tv, computers made after 2001 put out digital sound from 96k to 192k triggers what it feels like live electric wire touch my left side of the brain the longer i hear that frequency sound the stronger seizure & migraine gets.No medication work with my epilepsy so i had a section of the left side of brain removed. to stop the seizures. & months later after the surgery I went to 30 minute seizure from a head injury on the same side they did the surgery. That cause brain damage I can only listen to analog sound 48k = old radios, vcrs, crt tvsets computers with a sound card 16bit 48k this will not trigger my seizure, as soon i hear smart phones digital radio in cars, cable boxes, firestick, roko boxes etc any device that puts hi frequency 96k to 192k i start going to seizure, since they removed the left side i am aware my going around me & can still talk the seizure only effect my face, eyes - my eyes will contract & stay closed the nerves in face feel like electricity going through my face my lips will move up  & feel like very week i can pass out anytime. The longer I hear the stronger it gets - as soon the sound stops I will have seizure & migraine for hours until it subside in a quiet inviroment - i can't goto parties, bars, restuarants including dentist, epilepsy doctors etc including handicap buses to take me to work do you believe this they will not turn off there tv sets or car radios for me I keep telling them in 1 - 2 minutes i will have a seizure.  All my family relatives don't want no of me there devices are more important then life - while i am in there car they will play the radio & put me into seizures while they take me to the doctor. All relatives uncles, cousins, aunts, brothers, sisters, etc don't won't no part of me. I have nobody to help etc except my neighbor who will take me to the stores etc..

I have almost the same issue & i found out the Frequency of the sound triggers the seizure then the migraine headache, All new devices smart phones, direct tv boxes blueray players hi-def tv, computers made after 2001 put out digital sound from 96k to 192k triggers what it feels like live electric wire touch my left side of the brain the longer i hear that frequency sound the stronger seizure & migraine gets.No medication work with my epilepsy so i had a section of the left side of brain removed. to stop the seizures. & months later after the surgery I went to 30 minute seizure from a head injury on the same side they did the surgery. That cause brain damage I can only listen to analog sound 48k = old radios, vcrs, crt tvsets computers with a sound card 16bit 48k this will not trigger my seizure, as soon i hear smart phones digital radio in cars, cable boxes, firestick, roko boxes etc any device that puts hi frequency 96k to 192k i start going to seizure, since they removed the left side i am aware my going around me & can still talk the seizure only effect my face, eyes - my eyes will contract & stay closed the nerves in face feel like electricity going through my face my lips will move up & feel like very week i can pass out anytime. The longer I hear the stronger it gets - as soon the sound stops I will have seizure & migraine for hours until it subside in a quiet inviroment - i can't goto parties, bars, restuarants including dentist, epilepsy doctors etc including handicap buses to take me to work do you believe this they will not turn off there tv sets or car radios for me I keep telling them in 1 - 2 minutes i will have a seizure. All my family relatives don't want no of me there devices are more important then life - while i am in there car they will play the radio & put me into seizures while they take me to the doctor. All relatives uncles, cousins, aunts, brothers, sisters, etc don't won't no part of me. I have nobody to help etc except my neighbor who will take me to the stores etc..