Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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Tuesday, March 05, 2024
No Matter What Happens, I’ll Be Okay
In 2011, I had my first tonic-clonic seizure. I remember having muscle spasms that morning and feeling so out of touch. I couldn't tell what was real...
Tuesday, February 27, 2024
Shedding Light on the Struggles of Living With Epilepsy
I remember the first time I had an absence seizure . I was in my fifth-grade math class when I decided to raise my hand to answer a question asked by...
Friday, February 23, 2024
Sharing My Journey of Hope
I had my first seizure in 2022. I was eight months pregnant. I had never had any symptoms before, and I had no warning signs. I was teaching in my 2nd...
Tuesday, February 20, 2024
Finding What Works for Me
In 1996, I was diagnosed with epilepsy after having a tonic-clonic seizure early one morning. I remember coughing as I regained consciousness. I...
Tuesday, February 13, 2024
I Won't Hide Anymore
I've experienced the tight grip of epilepsy my entire adult life. In 2013, I needed answers as to why I was experiencing dizzy spells, so I went to...
Wednesday, February 07, 2024
Motivated to Make A Difference
I was diagnosed with benign rolandic epilepsy (BRE) about ten years ago when I had two documented tonic-clonic seizures. Not only was I diagnosed with...
Friday, February 02, 2024
Overcoming the Challenges of Living With Seizures
I was diagnosed with epilepsy at the age of 12. My first seizure occurred during our family vacation while I was wading in the waves at the beach. My...
Wednesday, January 24, 2024
Overcoming Challenges To Make a Difference
My name is Sophia, and I am 20 years old. I have lived with epilepsy for 13 years, since I was diagnosed at 7 years old. My epilepsy is caused by a...
Monday, January 22, 2024
Finding My Strength in a Supportive Community
Epilepsy caused a significant turning point in my life. It all started when I was 13 years old. I had my very first seizure at almost midnight on my...
Tuesday, December 19, 2023
Matthew's Journey With Dravet Syndrome
Matthew was diagnosed with epilepsy at 7 months old. We were convinced it was a one-time seizure. His siblings witnessed it and said he looked like a...